About the Programme

The Marie Curie Cancer Care Young People and Transition Programme has attempted to explore ways to improve the difficult and often unsatisfactory experience of a planned transition to adulthood for young people with life-limiting conditions.  A focus on the aspirations that these young people have for their adult lives rather than the needs that arise from frequently complex conditions has been a key principle and a distinguishing feature of the Programme.  By exploring creative ways to support these aspirations and therefore to challenge the traditional, needs-based focus of many services and the ethos of professional practice which are both cause and consequence of this focus, the Programme has complemented a range of other initiatives in this area being undertaken many people across the UK engaged in improving transition for this and other groups of young people with complex conditions.

The Programme was funded by the Department of Health as one element in a £30 million investment in improving children’s palliative care, overseen by a coalition of agencies acting as the Transition Partnership (Together for Short Lives, Help the Hospices, National Council for Palliative Care).

The Marie Curie Young People and Transition Programme had two key phases, both designed and managed by PublicServiceWorks (PSW) on behalf of Marie Curie Cancer Care.

  • Phase 1 (January to March 2011) focused on gathering evidence on the experience of young people and their families at transition and generated a series of recommendations for action.
  • Phase 2, which took place between May 2011 and July 2012,  built on the findings of this exercise by piloting a series of local and national initiatives designed to explore ways of tackling the complex challenges which get in the way of positive transitions for this group and other groups of young people with complex needs.

This site holds the material and reports generated by the programme so that practitioners and policy makers can access the detailed work as well as summary reports.

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